CoopeR & Duchenne
When Cooper was 4 1/2 years old he was diagnosed with Duchenne muscular dystrophy. It is a progressive muscle-wasting disorder. There is no cure or treatment.
The usual course of Duchenne is as follows:
• Loss of ambulation by age 12
• Loss of upper arm strength in teen years
• Heart and respiratory failure in the twenties
After dealing with the shock, pain, and anger, we began our Duchenne journey. Over the years we've gotten involved with several Duchenne organizations and met many other families, doctors and scientists. Together with our friends and family, we began running marathons and climbing mountains to help raise awareness and funds to help find a cure.
Cooper used a scooter to get around since elementary school. He had the strength but this helped protect his muscles. By the age of sixteen, he began needing a wheelchair full time.
He is now eighteen and doing a lot better than we had ever imagined. He just graduated from high school with honors and is now attending college. He also began singing and playing guitar two years ago and is writing and recording his own songs.
Fortunately, over the last several years, new treatments are beginning to look like a reality. We are hopeful that something might come in time to help keep the rest of his body strong, to help him continue making music! Please help us keep him rockin'!
Thanks so much for your support!
Scott and Cathy Jones (Cooper's parents)
In these difficult times, it is crucial that you stay strong and stay motivated, you will be surprised to find that nothing can stand in your way.
- Cooper J.
My son was recently diagnosed with Duchenne three months ago. It has been
a tough time, but it is very inspiring to see older Duchenne kids having successful lives with passions in the arts. We hope our son
will find a passion someday too. Please thank Cooper for sharing his beautiful
voice with us all.
- A Duchenne Parent
For more information about DUCHENNE
and ways you may HELP
please go to: