On May 18th 2006 our lives were turned upside down by devastating news. Our then 4 1/2 year old son, Cooper, was diagnosed with the deadly muscle wasting disorder, Duchenne Muscular Dystrophy (DMD).

We were in a state of absolute shock! There really hadn’t been any warning signs except maybe a bit slower at the playground (as in most cases).  As far as his pediatrician was concerned he was developing perfectly fine!

Nothing like this runs in our family. It was by chance that we discovered it. He went to a new school and the director noticed he was slow going up stairs and slow getting up off the floor. She felt it was maybe a minor neurological problem like that of her niece that was cured with a bit of physical therapy.  So we took him to a neurologist who ran some tests and then we got the call that changed our lives forever.

Like most people, we knew absolutely nothing about it.  DMD is the most common fatal, genetic childhood disorder, and affects approximately one out of every 3,500 boys each year worldwide yet we had never heard of it!  Basically, they told us that Cooper would be in a wheelchair by his mid teens with a life expectancy of mid twenties. 

No cure, no hope.

 WHAT???!!!

EVERY ACTION, NO MATTER HOW SMALL, WILL HELP US SAVE OUR SONS!

For more in depth information, please go to:   www.ParentProjectMD.org   or  www.endduchenne.org

If you would like to contact us personally, please e-mail us at:  info@cooperscure.org